Osteogenesis Imperfecta Foundation INC
OUR MISSION IS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH OSTEOGENESIS IMPERFECTA THROUGH RESEARCH TO FIND TREATMENTS AND A CURE, EDUCATION, AWARENESS AND MUTUAL SUPPORT. THERE ARE AT LEAST FOUR DISTINCT FORMS OF OSTEOGENESIS IMPERFECTA REPRESENTING EXTREME VARIATIONS IN SEVERITY AND AFFECTING 20,000 TO 40,000 PEOPLE IN THE UNITED STATES. OI REGIONAL METTINGS IN CHICAGO AND LOS ANGELES, OI SCIENTIFIC MEETINGI IN CHICAGO, AND RARE BONE DISEASE PATIENT NETWORK MEETING WERE AMONG THE SIGNIFICANT 2019 FISCAL YEAR HIGHLIGHTS.
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Financial Summary
202118 Key Officers & Employeesincluding President Cameron R Penn
| Title | Name | Avg Hrs / Week |
|---|---|---|
| President | Cameron R Penn | 2.00 |
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