USA Aniridia Network DBA

TO PROVIDE EDUCATIONAL AND SUPPORT PROGRAMS TO THOSE BORN WITH A GENETIC DISORDER CALLED ANIRIDIA SYNDROME, WHICH DUE TO UNDERDEVELOPED EYE STRUCTURES RENDERS THE CHILD TO LIVE LIFE WITH LOW VISION OR BLINDNESS AND OTHER MEDICAL CONDITIONS. THE MEDICAL CONFERENCES PROVIDES ALL ASPECTS: EDUCATION, CRITICAL SUPPORT AND OPPORTUNITIES TO BE SEEN BY EXPERT OPHTHALMOLOGISTS WHO VOLUNTEER THEIR TIME. IT ALSO GIVES PHYSICIANS AND RESEARCHERS QUALITY TIME TO DISCUSS AND BRAINSTORM IN EFFORTS TO WORK TOGETHER. ANIRIDIA FOUNDATION INTERNATIONAL (AFI) ALSO FUNDS ANIRIDIA RESEARCH AND PROVIDES IMPORTANT DATA TO RESEARCHERS IN HOPES THAT ADVANCING RESEARCH WILL IMPROVE THEIR QUALITY OF LIFE UNTIL THERE IS A CURE. ANIRIDIA SYNDROME IS COMPRISED OF CONDITIONS WHICH CAN CAUSE FURTHER LOSS OF VISION AND MEDICAL CONDITIONS ANYTIME FROM BIRTH ONWARD. THOSE WITH THIS GENETIC DISORDER STRUGGLE WITH DIFFICULT TO CONTROL GLAUCOMA, CHILDHOOD CATARACTS, CORNEAL SCARRING, RETINAL DETACHMENTS OR ANIRIDIA FIBROSIS