U.S. Department of Health and Human Services (HHS) - Health Resources and Services Administration (HRSA)
06/18/18 11:59 PM ET
Grants of up to $96,750 per year to Delaware, Maine, Hawaii, Nevada, and Montana community or faith-based organizations, tribes, and tribal organizations for information centers that support children and youth with special health care needs. Applicants are advised to create or verify the required registrations at least one month prior to the deadline.
This notice solicits applications for the Family-to-Family Health Information Centers (F2F HICs) Program. The purpose of this program is to provide information, education, technical assistance, and peer support to families of children and youth with special health care needs (CYSHCN) and the professionals who serve them.
The goal of the F2F HICs Program is to promote optimal health for CYSHCN by helping families and health professionals to partner in health care decision-making and facilitating access to cost-effective, quality health care.
The awardee will be responsible for collecting data on these objectives for the purposes of monitoring and evaluating the overall effectiveness of the program. Baselines should be established for these measures within the first year of the award.
-By 2022, increase by 5 percent from baseline the number of families of CYSHCN and professionals who have received information, education, and/or training from F2F HICs.
-By 2022, increase by 5 percent from baseline the number of CYSHCN and families, particularly families from underrepresented and diverse communities, trained to partner at all levels of shared decision-making.
-By 2022, increase by 10 percent from baseline the number and type of state agencies/programs and community-based organizations assisted in providing services/information to families of CYSHCN.
The F2F HICs are statutorily required to:
-Assist families of CYSHCN in making informed choices about health care in order to promote good treatment decisions, cost effectiveness and improved health outcomes;
-Provide information regarding the health care needs of, and resources available to, CYSHCN;
-Identify successful health care delivery models for CYSHCN;
-Develop, with representatives of health care providers, managed care organizations, health care purchasers, and appropriate state agencies, a model for collaboration between families of CYSHCN and health professionals;
-Provide training and guidance regarding the care of CYSHCN;
-Conduct outreach activities to families of CYSHCN, health professionals, schools and other appropriate entities and individuals; and HRSA-18-113 1
-Staff centers with families of CYSHCN who have expertise in federal and state public and private health care systems, and with health professionals.
In addition to the seven statutorily required activities, the F2F HICs are expected to:
-Use evidence-based practices related to family-centered care
-Develop partnerships with organizations serving CYSHCN and their families, especially in activities addressing disparities and emerging health trends. Partnerships should include, but not be limited to: state Title V programs and other state agencies/programs; other programs serving children such as Head Start; primary care organizations; parent/family-led organizations; patient navigator programs; federal agencies such as the Centers for Disease Control and Prevention (CDC), the Substance Abuse and Mental Health Services Administration (SAMSHA); and other HRSA programs/award recipients.
-Use and promote evidence-based/informed practices that reflect cultural and linguistic competencies
-Develop resources such as brochures, frequently asked questions and answers, webinars, web-based resources, or other resources for families and providers regarding the health care needs of CYSHCN and resources available in their state.
-Identify and track changes in health care delivery including changes in state law that impact families.
-Integrate the following Family/Professional Partnership Program principles throughout project policies and activities: (1) family-centered care, (2) cultural and linguistic competence, and (3) shared decision-making between families of CYSHCN, health professionals and appropriate state and community organizations.
-Demonstrate and promote family leadership and connection to the state systems of care for CYSHCN, through such activities as membership or involvement on statewide advisory councils, partnerships with state entities such as departments of education, social services, or housing.
-Collect, monitor, analyze, and report on data to: (1) measure the number and types of families served (e.g. race, ethnicity, language); (2) measure how effective F2F HICs have been in providing information, mentoring, and training to families and providers in engaging families of CYSHCN as they make informed health care decisions; and (3) inform program development and service delivery.
This program is authorized by Social Security Act, Title V, § 501(c) (42 U.S.C. § 701(c)), as amended by § 216 of the Medicare Access and Children’s Health Insurance Program (CHIP) Reauthorization Act of 2015 (P.L. 114-10), and § 50501 of the Bipartisan Budget Act of 2018 (P.L. 115-123).
Among U.S. children 0-17 years of age, 14.2 million children have a special health care need. Overall, 28 percent of U.S. households with children have at least one child with special health care needs. CYSHCN are those that have, or are at risk of having, a chronic physical, developmental, behavioral, or emotional condition and who require health and related services of a type or amount beyond that required by children generally. Studies demonstrate that engaging families as equal partners in their child’s health care decision-making reduces unmet health needs, problems with specialty referrals, out-of-pocket expenses and improves patient physical and behavioral function. Family engagement is defined as “patients, families, their representatives, and health professionals working in active partnership at various levels across the health care system to improve health and health care.”
Due to the growing numbers of CYSHCN and the complexity of their health care needs, CYSHCN may require a variety of services from multiple, diverse systems and often must access a number of different funding sources to pay for those services. A major challenge for families is accessing services in a system of care, which is often fragmented that will adequately address their children’s needs. In many cases, specialty services are not coordinated with primary care or other community-based services, and coverage for services is not comprehensive. To meet all of the needs of their children, families of CYSHCN require an in-depth understanding of the health care system and options for health care. Unfortunately, there often is no clear, family- friendly, easily accessible, and objective source for this information. For many parents/families, the best sources of information are their peers – other families of CYSHCN whose extensive experiences with navigating the health care system can provide them with a wealth of relevant information and knowledge.
In order to help address the challenges for families in accessing care, the F2F HICs Program was developed to fill the gaps in information and support for families of CYSHCN and the providers who care for them. Originally funded through a Special Projects of Regional and National Significance (SPRANS) pilot program in 2005, and currently authorized and funded under Section 501(c)(1)(a) of the Social Security Act, the network of F2F HICs is a cornerstone of ongoing family engagement efforts. These centers are staffed by family members who have first-hand experience using health care services and programs for CYSHCN. This experience is used to provide support, patient-centered information, resources, and training to families and professionals around health issues faced by CYSHCN. Since the program’s inception in 2005, the network has grown from 29 to a total of 51 funded F2F HICs (one in each of the 50 states and the District of Columbia), and the centers have more than quadrupled the number of families served. Data collected from June 1, 2015 to May 31, 2016 revealed that F2F HICs provided outreach and information to 995,246 families and 353,687 professionals and served a total of 169,241 families and 73,768 health professionals through individualized assistance and/or training from an F2F HIC.
National surveys indicate that families from culturally diverse backgrounds experience a disproportionate number of health inequities including access to coordinated, ongoing, comprehensive care within a medical home and access to adequate health insurance in comparison to white, non-immigrant families. F2F HICs seek to address health inequities and meet the needs of diverse families of CYSHCN by disseminating culturally competent materials and resources in multiple languages, conducting outreach to culturally diverse communities, partnering with non-profit groups that represent the interest and needs of ethnic and cultural minorities, providing support groups and subcontracting with members of specific communities to coordinate trainings. According to the National Center for Family Professional Partnerships site, in FY2016 F2F HICs reported that they served 31 percent of families who self-identify from diverse racial populations and 29 percent who self-identify as Hispanic.
The F2F HICs program fills a critical need for reliable information and support for all families with CYSHCN. Additionally, they serve as an important complement to, and resource for, other HRSA-funded programs that support direct health care service delivery or system infrastructure, such as Title V, and other programs that serve families with condition-specific health care needs.
GrantWatch ID#: 126399
Estimated Number of Awards: Up to five grants
Up to $96,750 per year
The period of performance is September 1, 2018 through May 31, 2022 (3 years and 9 months).
Funding beyond the first year is dependent on the availability of appropriated funds for the F2F HICs Program in subsequent fiscal years, satisfactory recipient performance, and a decision that continued funding is in the best interest of the Federal Government.
Before starting your grant application, please review the funding source's website listed below for updates/changes/addendums/conferences/LOIs.
You may request additional information and/or technical assistance regarding business, administrative, or fiscal issues related to this NOFO by contacting:
Hazel N. Booker, Grants Management Specialist
Division of Grants Management Operations
OFAM Health Resources and Services Administration
5600 Fishers Lane, Mailstop 10W57A
Rockville, MD 20857
Telephone: (301) 443-4236
You may request additional information regarding the overall program issues and/or technical assistance related to this NOFO by contacting:
LaQuanta P. Smalley, MPH, BSN, RN
Public Health Analyst
Attn: Family-to-Family Health Information Centers (H84)
Program Maternal and Child Health Bureau
Health Resources and Services Administration
5600 Fishers Lane, Mailstop 18W-09A
Rockville, MD 20857
Telephone: (301) 443-2372
USA: Delaware; Hawaii; Maine; Montana; Nevada
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