Sickle Cell Disease Newborn Screening Follow-Up Program

Grant to a USA Organizations or Agency to Operate
a Congenital Blood Disorder Resource Center

GrantWatch ID#: 176226
Agency Type:


US Department of Health and Human Services - Health Resources and Services Administration (HRSA) - Maternal and Child Health Bureau (MCHB) - Division of Services for Children with Special Health Needs/Genetic Services Branch (DSCSHN/GSB)


11/10/16 11:59 PM ET

Request a Grant Writer

Grant to a USA public or private organizations, Indian tribe, tribal organization, or a faith-or-community-based organization to operate a technical assistance center for sickle cell disease treatment of infants. An informational webinar is scheduled for October 6. The center will work to improve the care and reduce rates of loss to follow-up of individuals identified with sickle cell disease (SCD) and sickle cell trait through universal newborn screening.

The Center will support the efforts of community-based organizations (CBOs) on sickle cell disease education and service coordination. This program will enhance sickle cell CBOs’ ability to ensure that individuals diagnosed with sickle cell disease through newborn screening receive appropriate follow-up services including counseling, education, access to a medical home, and other support services.


Estimated Number of Awards: Up to 1


The project period is June 1, 2017 - May 31, 2021 (4 years).

Any public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450b) is eligible to apply.

Faith-based and community-based organizations are eligible to apply.

Foreign entities are not eligible for HRSA awards, unless the authorizing legislation specifically authorizes awards to foreign entities or the award is for research. This exception does not extend to research training awards or construction of research facilities.

A pre-submission technical assistance webinar for all prospective applicants will be held on Thursday, October 6, 2016 from 3:00 PM EST - 5:00 PM EST.

Dial-in: 888-385-9734
Passcode: 9522161
Web link:

View this opportunity on

The registration process requires information in three separate systems:

-Dun and Bradstreet:
-System for Award Management (SAM):

Applicants are advised to ensure than and registrations and passwords are current as soon as possible. Registration in all systems may take up to one month to complete.

Before starting your grant application, please review the funding source's website listed below for updates/changes/addendums/conferences/LOIs.

Edward Donnell Ivy, MD, MPH
Director of Hemoglobinopathies Programs
P: (301) 443-9775
F: (301) 480-1312



See the full text of this grant

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